The Mastocytosis Quality of Life Questionnaire (MC-QoL) is the first and only mastocytosis-specific quality of life (QoL) questionnaire available so far. It is a short, valid and reliable instrument to determine QoL impairment in patients with cutaneous and indolent systemic mastocytosis. MC-QoL was developed by a Charité team of scientists led by PD Dr. Frank Siebenhaar, PD...

The Mastocytosis Control Test (MCT) is an easy-to-use disease-specific tool to assess disease control in patients with cutaneous or indolent systemic mastocytosis. The MCT is a retrospective tool and can be used directly, quickly, and easily during patient presentation. A cut off value helps distinguish patients with poorly controlled disease from patients with...

This questionnaire for assessing disease activity in patients with cutaneous and indolent systemic mastocytosis is a symptom questionnaire that was specially developed for patients with mastocytosis. The Mastocytosis Activity Score (MAS) is easy to use and has been validated for patients with cutaneous and indolent systemic mastocytosis. The MAS was developed at Charité by a...